More Australians are looking for help with long COVID. But we are not tracking numbers

Melbourne teacher Caroline Hewson’s home was hit by COVID-19 in January, when Victoria saw a massive increase in Omicron infections.

Key points:

  • Tens of thousands of Australians are likely to suffer from long-term COVID this year
  • But there are no national data to monitor the prevalence of the disease
  • A health economist says closer monitoring is needed for governments to respond better

Although her children and her husband recovered reasonably well, Mrs. Hewson did not.

“It ended up being that I missed a lot of work and life,” he said.

Debilitating fatigue, shortness of breath, and brain fog subsided and lingered for months, causing a major disruption to the usually active 42-year-old.

“I was going upstairs to my house, and I had to sit down, I couldn’t even get into a bedroom … I had to sit on the top step and get back,” he recalled.

“And I would just breathe with the feeling that I’m drowning and then I’d need half an hour lying down after the effort.”

In her work as a primary school teacher specializing in literacy intervention, Ms. Hewson’s voice is key.

But during months of long COVID, his voice lost all power and struggled to be a father, let alone work.

Although he received support from his workplace for improvement, he felt “terribly guilty” by the students for not being able to support him.

He also burned almost all of his sick leave.

“It became old news”

Doctors supported, but they too were learning about the disease and could not offer much more advice than resting and drinking plenty of fluids.

Because someone used to lead not only her life but also that of her young children, Mrs. Hewson found the widespread disease difficult to accept, despite the support of those around her.

“It seemed like as time went on, it became old news,” he said.

“What do I keep saying? ‘Yeah Al that sounds pretty crap to me, Looks like Al that sounds crap to me, Looks like Al that sounds crap to me, Looks like Al that sounds crap to me, Looks like Al that sounds crap to me, Looks like Al that sounds crap to me. .

During the heyday of her long symptoms of COVID, Ms. Hewson was unable to enjoy her usual activities such as gardening. (ABC News: Joseph Dunstan)

Ms. Hewson believes she is now clear about the long COVID. But it was a slow journey.

“It was almost like I was increasing by 1% every day or two, in terms of feeling better,” she said.

“It wasn’t like I woke up one day, I’ve heard some people say you wake up one day and say, ‘Oh, I’m better.’

“It wasn’t like that. It was so incredibly gradual.”

Even now, he still feels like a “human guinea pig” without knowing if his illness will have lasting effects on his brain or body.

Australia is not tracking long-term cases of COVID in real time

While we know that Mrs Hewson’s experience is far from isolated, no official figures are being calculated on how many Australians are suffering from COVID for a given time.

Several states and territories have established long-term COVID clinics and can report patients being treated there, but many people with long-term COVID are being treated by GPs and recovering in the community.

This is a figure that health economist Martin Hensher tried to find out earlier this year.

The Tasmanian University researcher was part of a team that used a series of data to produce an estimate of the number of Australians with long COVID after the first wave of Omicron.

Given the significant number of unknowns, he suggested there were probably tens of thousands, and in the worst case, more than 300,000, Australians would struggle with long-term symptoms of COVID for at least three months this year.

Professor Hensher said that although he had not had the opportunity to revise these calculations to take into account subsequent waves of infections, “in very dirty terms … I would expect our estimates to double.”

Health officials are urging people to wear masks indoors this winter to limit the spread of the virus and save lives. (ABC News: Danielle Bonica)

“So I would say, I would have thought that right now and in the last few months, many tens of thousands of Australians have definitely had COVID for a long time,” he said.

“And you know, in the worst case scenario, maybe half a million people could have COVID for three months.

“Then these numbers will go down steadily over time, but … I think we’re still probably looking at tens of thousands of people who could still be sick with long-term COVID a year after their initial infection.”

Most of us are looking for long symptoms of COVID online

Although the numbers are not being counted, Dr Nirvana Luckraj is in a position to assess the interest among Australians in obtaining information on long COVID.

She is the medical director of the government-funded healthdirect service, which offers free online and telephone medical advice.

Nirvana Luckraj says doctors are posting more information to help patients better understand their long COVID journey. (Provided by: healthdirect)

“There has been a huge increase in the number of people looking for reliable information on long-term COVID since March of this year,” Dr. Luckraj said.

“We are seeing about 100,000 people a week, visiting our long information about COVID and recovery on our website.”

He said between 10 and 20 percent of those with COVID may have some form of post-COVID condition.

Recent research in the UK suggests that Omicron has a slightly lower risk of long-term COVID than Delta, but the researchers noted that the high volume of Omicron cases meant that there were more long-term COVID cases in general due to the waves. of Omicron.

Conservative estimates have found that tens of thousands of Australians will suffer long COVID this year. (ABC News: Danielle Bonica)

The most common symptoms are fatigue, cough, difficulty breathing, memory difficulties, confusion, joint or muscle aches, anxiety or low mood, and insomnia and poor sleep.

“Studies have identified that patients most at risk for post-COVID-19 conditions are those with a more serious illness, including one requiring intensive care,” said Dr. Luckraj.

“And those with other existing chronic illnesses, such as respiratory illnesses, diabetes, hypertension, too, those who are older and women appear to be more likely to have long-term COVID or post-COVID as well.”

Doctors ask those at higher risk to discuss with a GP if they are eligible for new antiviral drugs and establish an access plan so they can receive them within five days if they become infected.

Dr. Luckraj said GPs were better equipped to support people like Ms Hewson, but simple advice to rest remained key.

“The advice really is to keep up the pace, not get exhausted, divide your daily activities into smaller, more manageable tasks,” he said.

“If you’re doing gardening, grocery shopping, laundry … spread it out during the week, so you can rest in between and ask family or friends for help.

“And prioritize tasks: just do the essential tasks and activities, with family support, if necessary.”

The long-term COVID-19 is likely to cause a continuing disruption to the economy

In addition to the pain and hardship that people with long-term VOCID suffer from, examples abroad suggest that the condition will also disrupt the economy.

Professor Hensher noted the recent comments by the Governor of the Bank of England, who last month told UK politicians that a long-term rise in the disease was holding back the recovery of the pandemic economy.

“And they thought the most important factor driving the number of people with long-term illnesses … they think the most likely explanation for that was the long COVID,” he said.

“So they’re actually saying that COVID is long leading directly to labor shortages across the UK.”

Read more about the spread of COVID-19:

Professor Hensher said addressing the political implications of long-term COVID was one of the reasons why it should be studied more closely.

It urges the authorities to conduct the kind of surveys that have allowed the UK to keep a closer eye on the long-term prevalence of COVID.

“We really need to have real-time monitoring of what’s going on with long-term COVID, but also with long-term disability and illness in the job market,” he said.

“I think as a society, we will see a continuous disruption, mainly due to absences from work and school.”

By the end of this year, the Australian Institute for Health and Welfare aims to have a national data set that brings together the different COVID-19 case data.

This includes data on deaths, hospitals, care for the elderly and immunization and will help further research into the medium- and long-term health effects of COVID-19.

But Professor Hensher said a simpler family survey was needed now.

“GPs are increasingly concerned about the level of work that is presented in general practice on this,” he said.

“We really need to hear this … what kind of support do people need through the healthcare system?”

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